Menopause Awareness Month: The Connection Between Menopause and Gynaecological Cancer for Young Women

October is Menopause Awareness Month, and it’s an especially important time for us at Yowwig to shed light on the unique challenges faced by young women who have been affected by gynaecological cancers. In some young women, cancer treatments have resulted in menopause for example, surgical menopause, a life-changing event that can bring both physical and emotional hurdles. While menopause is a natural stage of life, entering menopause earlier than expected, especially due to cancer treatment, requires a different kind of vigilance and care.

Understanding Surgical Menopause

Surgical menopause occurs when a woman’s ovaries are removed as part of cancer treatment, which leads to a sudden drop in hormone levels. Unlike natural menopause, which happens gradually, surgical menopause brings immediate symptoms, often more intense, including hot flushes, mood swings, and vaginal dryness. It’s not just the physical symptoms, many women in their 20s, 30s, and 40s are suddenly thrust into a stage of life they weren’t expecting for decades. This can be emotionally overwhelming and isolating.

At Yowwig, we know that for young women who are battling or have survived gynaecological cancers like ovarian, uterine, and cervical cancer, surgical menopause adds another layer of complexity to your journey. It can feel unfair and daunting, but it’s also a reminder of your incredible strength and resilience.

Menopause Symptoms vs. Gynaecological Cancer Symptoms

One of the key messages this month is the importance of staying vigilant about your health, especially if you’re experiencing surgical menopause. Symptoms such as hot flushes and night sweats may be expected, but if you notice abnormal bleeding, pelvic pain, bloating, or other unusual changes, these could signal more than just menopausal symptoms.

Gynaecological cancers can sometimes mimic the signs of menopause, which is why it’s critical to pay attention to your body and seek medical advice when something feels off. Ovarian, uterine, and cervical cancers are particularly important to monitor during and after menopause. While you may associate menopause with age, cancer-related menopause can complicate things, making it harder to distinguish between what’s “normal” and what needs urgent attention.

Taking Charge of Your Health

One of the most empowering things you can do this Menopause Awareness Month is to take charge of your health. Be proactive—schedule regular check-ups, know the signs and symptoms of gynaecological cancers, and don’t hesitate to raise concerns with your healthcare provider.

Cancer survivors often live with the lingering fear of recurrence, but staying informed and aware can help reduce that fear and keep you in control. Early detection is the key to saving lives, and it’s a reminder that awareness starts with you.

Emotional Support is Key

The emotional toll of going through surgical menopause at a young age can be heavy. Many women feel a loss of femininity, experience anxiety or depression, or struggle with the rapid changes their bodies go through. It’s important to acknowledge these feelings and seek support. Whether it’s through a support group, talking to a therapist, or connecting with other women in the Yowwig community, you don’t have to go through this alone.

We understand that surgical menopause can feel like yet another obstacle, but you are not defined by your cancer or your menopause. You are bold, resilient, and strong—and at Yowwig, we’re here to support you every step of the way.

Join the Conversation

This Menopause Awareness Month, let’s continue the conversation about the intersection of gynaecological cancers and menopause. By sharing your story, you might just help another young woman feel less alone. Together, we can raise awareness, support each other, and push for better understanding and treatment options for those experiencing surgical menopause.

If you or someone you know is dealing with unusual symptoms, please don’t dismiss them as “just menopause.” Talk to your healthcare provider, stay informed, and remember that early detection can make all the difference.

#MenopauseAwarenessMonth #GynaecologicalCancer #SurgicalMenopause #WomensHealth #CancerSurvivor #EarlyDetectionMatters

Menopause Awareness Month: The Connection Between Menopause and Gynaecological Cancer for Young Women

Differing Opinions in Cancer Treatment for a Young Woman

Patient’s Situation:
Sophie, a 30-year-old woman, has been diagnosed with early-stage ovarian cancer. She has not had children yet but hopes to start a family in the future. Sophie meets with two healthcare consultants to discuss her treatment options.

Consultant 1Mr. Taylor, a gynaecological oncologist, recommends fertility-sparing surgery. This involves removing only the affected ovary and fallopian tube, leaving the other ovary and uterus intact, which would preserve Sophie’s ability to conceive naturally. Mr. Taylor explains that, given her desire for children and the early stage of the cancer, this approach could balance effective treatment with fertility preservation. However, there is a small risk that the cancer could return, and she would need careful monitoring.

Consultant 2Dr. Stevens, another gynaecological oncologist, advises a total hysterectomy and removal of both ovaries and fallopian tubes. He stresses that this is the most definitive treatment to ensure the cancer is completely removed and prevent recurrence. While this would eliminate the possibility of conceiving naturally, Dr. Stevens suggests egg freezing and surrogacy as alternative routes for Sophie to have children in the future.

Sophie’s Reaction:
Sophie feels confused and distressed. Both consultants are highly experienced, yet their recommendations are very different. Mr. Taylor’s suggestion offers the possibility of motherhood, which Sophie deeply values, but she is anxious about the risk of the cancer returning. On the other hand, Dr. Stevens’ recommendation of a more radical approach feels safer in terms of her long-term health, but the thought of losing her fertility is deeply upsetting.

Why the Opinions Differ:

  • Risk Management: Mr. Taylor focuses on balancing cancer treatment with preserving Sophie’s fertility, taking into account her personal goals. Dr. Stevens prioritises a more definitive treatment to minimise the risk of recurrence, even if it comes at the cost of fertility.
  • Different Treatment Approaches: While both consultants are following evidence-based guidelines, they have different approaches to managing risk and treatment outcomes.
  • Personal Philosophy: Some consultants are more willing to accept a degree of uncertainty to preserve fertility, while others favour a more aggressive approach to ensure the highest chance of being cancer-free.

How Sophie Can Cope:

  • Ask for Detailed Explanations: Sophie could ask both consultants to explain the risks, benefits, and long-term outcomes of each option in more detail, especially regarding the chances of recurrence and her fertility.
  • Multidisciplinary Team (MDT) Meeting: Sophie could request that her case be discussed by a broader team of specialists, including fertility experts and oncologists, to provide her with a more rounded perspective on the best course of action.
  • Fertility Counselling: Speaking with a fertility specialist could help Sophie explore options such as egg freezing, IVF, or surrogacy, giving her more clarity about her future family planning.
  • Seek a Third Opinion: Sophie could consider seeking another opinion to help her make a well-informed decision that aligns with both her health and personal values.

Why This Happens:

  • Different Priorities: Consultants often weigh the risks and benefits of treatment differently, depending on the patient’s circumstances. Mr. Taylor is prioritising Sophie’s fertility, while Dr. Stevens is focusing on her long-term survival and reducing the risk of cancer recurrence.
  • Patient-Centred Care: Each consultant interprets Sophie’s personal goals differently. Mr. Taylor’s approach is shaped by Sophie’s desire to have children, while Dr. Stevens is more focused on a definitive cure.


Though receiving different opinions can be upsetting for Sophie, these differing views reflect the complexity of cancer care, particularly for young women with fertility concerns. By seeking further advice and understanding her options, Sophie can make the choice that best aligns with her values and future aspirations.

Differing Opinions in Cancer Treatment for a Young Woman

Challenges of young women with gynaecological cancers

Young women diagnosed with gynaecological cancers face a range of unique challenges due to their age, life stage, and the nature of the diseases. These challenges often span physical, emotional, reproductive, and social aspects of their lives. Here are some of the key challenges young women may encounter when dealing with gynecological cancers:

1. Impact on Fertility and Reproduction:

  • Fertility Preservation: Many gynaecological cancers, such as cervical, ovarian, and uterine cancers, and their treatments (e.g., surgery, radiation, chemotherapy) can affect a woman’s ability to conceive. Fertility preservation options, such as egg freezing or ovarian tissue preservation, need to be considered before treatment, which adds complexity to their decision-making process.
  • Premature Menopause: Treatments like chemotherapy, radiation, or surgical removal of reproductive organs can cause early or premature menopause, affecting not only fertility but also hormonal balance, emotional well-being, and long-term health.

2. Emotional and Psychological Impact:

  • Body Image and Sexuality: The physical effects of surgery (e.g., hysterectomy, removal of ovaries, or mastectomy in the case of concurrent cancers) can have a profound impact on body image and self-esteem. Scarring, changes in sexual function, or altered appearance may lead to challenges in intimacy and sexual relationships.
  • Fear and Anxiety: Young women may experience heightened anxiety about the future, including concerns about recurrence, long-term survival, and how the disease will affect major life goals, such as having a family or pursuing a career.
  • Mental Health: Young women with gynecological cancers are more prone to depression, anxiety, and emotional distress due to the uncertainty of the diagnosis and its far-reaching consequences on their personal life.

3. Impact on Relationships:

  • Romantic Relationships: Cancer can affect intimate relationships, with challenges around fertility, sexuality, and emotional well-being. For single women, concerns about dating and future relationships may also arise, with worries about how to disclose their medical history.
  • Family Dynamics: Younger women may rely heavily on family members for support, but this can sometimes lead to strained relationships or feelings of guilt for needing help during their treatment.

4. Career and Financial Concerns:

  • Career Disruption: Young women with cancer may need to take time off from work or school for treatment and recovery, which can delay career progression or lead to lost opportunities. The impact of cancer on a young woman’s professional life can be particularly difficult at a time when they are often establishing themselves in their careers.
  • Financial Burden: The cost of treatment, including surgery, chemotherapy, radiation, fertility preservation, and ongoing follow-up care, can be overwhelming. Younger women may have less financial stability, fewer savings, or incomplete insurance coverage, making it harder to afford care.

5. Lack of Age-Specific Support:

  • Limited Peer Support: Many support groups and resources are tailored to older women, who are more commonly affected by gynecological cancers. Younger women may feel isolated, as they are often surrounded by older patients with different life experiences and concerns.
  • Psychosocial Support: Access to counselling, mental health support, and peer networks specifically for young women with cancer is vital but often limited.

6. Genetic Concerns:

  • Hereditary Syndromes: Some gynecological cancers, such as ovarian cancer, may be associated with hereditary genetic mutations like BRCA1 or BRCA2. For young women, discovering a hereditary cancer syndrome can raise concerns about family planning, including passing the mutation to children or needing prophylactic surgeries at an earlier age.

7. Early Diagnosis and Awareness:

  • Delayed Diagnosis: Gynaecological cancers in young women may be misdiagnosed or detected later because they are less common in younger populations. Symptoms such as abnormal bleeding or pelvic pain can sometimes be attributed to more benign causes, leading to delays in diagnosis.
  • Awareness: There is often a lack of awareness among young women regarding the risk factors and symptoms of gynaecological cancers, leading to delayed medical consultations and, consequently, later-stage diagnoses.

8. Navigating Treatment Options:

  • Complex Treatment Decisions: Young women may face difficult choices regarding their treatment options, particularly when balancing cancer treatment with the potential impact on fertility, sexual health, and long-term well-being. These decisions are often time-sensitive and emotionally charged, requiring clear communication between the patient and medical team.
  • Long-Term Effects: Young women may be more concerned about the long-term side effects of treatments, such as chronic pain, changes in sexual health, hormone replacement therapy (for early menopause), or an increased risk of secondary cancers.

9. Stigma and Misunderstanding:

  • Social Stigma: Gynaecological cancers are often associated with stigma because they involve reproductive organs. This can make young women hesitant to talk openly about their diagnosis, leading to isolation.
  • Lack of Understanding: Friends, colleagues, or even healthcare providers may not fully understand the emotional and physical challenges faced by young women with gynaecological cancers, contributing to feelings of alienation.

10. Survivorship and Follow-Up Care:

  • Survivorship Care: After completing treatment, young women may face ongoing issues, such as managing the risk of recurrence, dealing with chronic side effects, and balancing survivorship with returning to a normal life. They may need regular follow-up care and monitoring for the long term, which can lead to anxiety about recurrence.
  • Quality of Life: The long-term effects of treatment, including hormonal changes, fatigue, and emotional challenges, can affect a woman’s quality of life and require ongoing support.

Addressing These Challenges:

Support for young women with gynaecological cancers must be multifaceted, including medical, emotional, and social interventions. This can involve multidisciplinary care teams, access to fertility specialists, counselling, financial planning resources, and tailored support groups to help them navigate the complex challenges they face.

Challenges of young women with gynaecological cancers

The signs and symptoms of cervical cancer

Cervical cancer often develops slowly and may not present any noticeable signs or symptoms in its early stages. However, as the cancer progresses, certain signs and symptoms may become apparent. Here are the common signs and symptoms associated with cervical cancer:

1. Abnormal Vaginal Bleeding:

  • Bleeding between periods: Irregular or unexpected bleeding that occurs between normal menstrual periods.
  • Bleeding after sexual intercourse: Post-coital bleeding is a common symptom of cervical cancer.
  • Bleeding after menopause: Any vaginal bleeding after menopause is a concerning symptom and should be investigated.
  • Heavier or longer-than-normal periods: Menstrual periods that last longer or are significantly heavier than usual can be a symptom.

2. Unusual Vaginal Discharge:

  • Watery, bloody, or foul-smelling discharge: This can occur at any time and may be heavier than usual or have an unusual odour.

3. Pain or Discomfort:

  • Pelvic pain: Persistent pelvic pain that is not related to the menstrual cycle may be a sign of cervical cancer.
  • Pain during intercourse: Discomfort or pain during sexual intercourse (dyspareunia) can be a symptom of advanced cervical cancer.

4. Urinary Symptoms:

  • Difficulty urinating: Tumors can press on the bladder or urethra, causing problems with urination.
  • Frequent urination: An increased need to urinate may occur if cancer is affecting nearby organs.
  • Blood in the urine: Haematuria (blood in urine) can be a symptom if cancer has spread to the bladder.

5. Bowel Symptoms:

  • Changes in bowel habits: Constipation, diarrhoea, or changes in stool consistency can occur if the cancer affects the rectum or nearby organs.
  • Blood in stool: Blood in bowel movements may be a sign that cervical cancer has spread to the gastrointestinal tract.

6. Leg Swelling:

  • Swelling of one or both legs: Advanced cervical cancer may cause leg swelling if the tumour blocks lymphatic or blood vessels, leading to lymphoedema.

7. Fatigue:

  • Unexplained fatigue: Feeling extremely tired or weak for no apparent reason can be a symptom of cancer or a result of blood loss associated with the cancer.

8. Weight Loss and Loss of Appetite:

  • Unexplained weight loss: Significant weight loss without any changes in diet or exercise can occur as cancer progresses.
  • Loss of appetite: A reduced desire to eat can also be a symptom in more advanced cases.

9. Back or Leg Pain:

  • Persistent back or leg pain: This can occur if the tumour presses on nerves or surrounding tissues.

When to See a Doctor:

If you experience any of these symptoms, especially abnormal vaginal bleeding, unusual discharge, or pain, it’s important to consult a healthcare provider. Early detection through regular Pap (cervical) smears and HPV testing is crucial for preventing and catching cervical cancer at an early stage when it is more treatable.

Importance of Screening:

  • Pap/Cervical Smear: Regular smears can detect precancerous changes in the cervix, allowing for early intervention before cancer develops.
  • HPV Testing: The human papillomavirus (HPV) is a leading cause of cervical cancer, and HPV testing can help assess your risk.

Early cervical cancer may not cause noticeable symptoms, so regular screening is vital for early detection.

The signs and symptoms of cervical cancer

January is cervical screening awareness week

Cervical Screening Awareness Week is an annual event which will run from 15th to 21st June 2020. Cervical cancer is the most common form of cancer in women under 35 with two women in the UK per day dying from the disease. Regular cervical screening appointments can prevent up to 75% of instances of cervical cancer, saving 5000 lives per year. Despite this, many women are reluctant to have this test done with a quarter of women not responding to their screening invitation. Cervical Screening Awareness Week is organised by the charity Jo’s trust, a charity dedicated to women affected by cervical cancer or abnormalities.Advertisements

Cervical Screening Awareness week aims to encourage all women to have regular cervical screening as well as to provide information and reassurance around any fears or embarrassment that women may have concerning taking the test.

During the week there will be information stands at GP surgeries, workplaces and sports centres, fundraising events and a social media campaign where women are urged to tell their stories relating to cervical cancer and cervical screening.

More information about Cervical Screening Awareness Week and information about cervical cancer and cervical screening itself can be found on the Jo’s Trust website http://www.jostrust.org.uk or from your local GP’s office.

https://www.awarenessdays.com/awareness-days-calendar/cervical-screening-awareness-week-2021/

January is cervical screening awareness week

You still think you’re too young to have ovarian cancer? Think again!

Amy’s story

“He said: “It’s cancer.” I don’t remember the rest of the meeting. I couldn’t speak. I felt numb.”

Age: 19

Cancer type: ovarian cancer

Like many young people, my cancer diagnosis didn’t come very quickly. It wasn’t easy convincing anyone I wasn’t well.

It all started with an uncomfortable pain in my side. It wouldn’t go away so I visited my GP, and after some pestering, I was sent for a scan to look for possible endometriosis. The scan actually showed a 7cm cyst in my left ovary. The doctor told me it would have to be removed through key-hole surgery, but I would be on a waiting list as it wasn’t urgent.

I wasn’t happy with this at all. For the eight months I waited for that operation I was bothering every doctor I could find, telling them that I just felt wrong. Nobody would listen, but I knew something strange was happening because I was constantly tired. I quit everything I loved, I’m a singer and musical theatre performer but I stopped performing completely.

I remembered the cancer awareness session we’d had in school a few years ago from Teenage Cancer Trust really vividly, and I remembered them telling us to be persistent if we felt something wasn’t right. I listened to this, and I might not be here today without that advice.

When the time came to remove the cyst, I told the surgeon I had concerns, and for the first time someone listened to me. In hindsight, this conversation may have saved my life. The surgeon agreed to have an extra look about while he was in there. When I woke up from my operation the surgeon had removed the cyst but had also found something else. He thought it was scar tissue and sent it for testing. He told me it was most likely an infection.

A few weeks later he called my parents on a Friday. I wasn’t in but he told them to come with me for an urgent scan on Monday. I said to my parents “I think I have cancer” but they thought I was being dramatic. I just knew it. On the Monday, I had the scan and met with the surgeon. He said he had the results from the tissue he’d sent away.

He said: “Its cancer.” I don’t remember the rest of the meeting. I couldn’t speak. I felt numb. How could this be happening to me? I was 19 and scared. I felt alone.

Read more: https://www.teenagecancertrust.org/get-help/young-peoples-stories/amy-glasgow

You still think you’re too young to have ovarian cancer? Think again!

IVF linked to increased ovarian cancer risk? What are your thoughts?

IVF women third more likely to develop ovarian cancer

British health experts said the new findings were serious enough to consider screening IVF patients at regular intervals

Women who undergo IVF are a third more likely to develop ovarian cancer, the biggest ever study of fertility treatment in the world has discovered.

“Most analyses of the dataset suggest that this increased risk was principally because of the nature of women needing these treatments in the first place not due to the hormone drug treatments themselves”
Professor Alastair Sutcliffe, Institute of Child Health at UCL

Scientists at University College London said underlying health problems in infertile women may be driving the increased risk, but warned that the research ‘leaves open the possibility’ that the procedure itself might be to blame.

Previous studies have suggested that ovarian stimulation methods used to harvest eggs could fuel cancer, but most specialists dispute the dangers and a 2013 Cochrane review found no strong evidence of a link.

However British health experts said the new findings were serious enough to consider screening IVF patients at regular intervals and called for infertile women to be informed that their risk of ovarian cancer was higher than that of women who conceive naturally.

In a groundbreaking study, researchers looked at every IVF procedure recorded by the Human Fertilisation and Embryology Authority (HFEA) which took place in Britain between 1991 and 2010, involving more than 250,000 women.

Presenting the research at a fertility conference in the US, Professor Alastair Sutcliffe from the Institute of Child Health at UCL, said the findings were ‘mixed news’ for patients.

“Compared to other women in the UK of the same age range and time frame we found the rates of breast and uterine cancer were no different to UK women as a whole. However there was an increased risk of ovarian cancer,” he said.

“Most analyses of the dataset suggest that this increased risk was principally because of the nature of women needing these treatments in the first place not due to the hormone drug treatments themselves.”

However the findings showed the risk was highest in the first three years after receiving treatment and in younger women.

The authors conclude in their paper: “Certain results argue against an association with assisted reproductive technology itself, but others leave open the possibility that it might affect risk.”

Prof Sutcliffe said there was a ‘small possibility’ that IVF could raise the risk of cancer.

Fertility problems are estimated to affect one in seven heterosexual couples in Britain. Around 50,000 women in the UK undergo 65,000 rounds of IVF or other assisted fertility methods each year.

The risk is still small however. Just 15 in every 10,000 women developed ovarian cancer over the study period, compared with around 11 in 10,000 of the general population.

Professor Geeta Nargund, Medical Director of Create Fertility, which has five clinics in the UK, said that the findings were concerning.

“Not enough has been done to safeguard the health and safety of women undergoing IVF in the UK,” she said.

“IVF should be used only when it is really needed. What we do not want is our interventions to put women’s health at risk. We should be moving towards milder stimulation and fewer drugs in IVF.’

And she said that other doctors should not disregard the findings.

“The causative factors at the moment are not clear – but until they are we should support cancer screening on the NHS.”

“I think it is important that people understand that infertility is not just a cosmetic disease, it is associated with other diseases including ovarian cancer”
Richard Paulson, ASRM vice president

Dr Adam Balen Professor of Reproductive Medicine and Surgery at the University of Leeds, and Chair of The British Fertility Society said the NHS should consider whether women undergoing IVF should be routinely screened for cancer.

“This study, from a huge database, suggests that women who have IVF with certain conditions, such as endometriosis, may be at increased risk of developing ovarian cancer.

“The question remains as to whether women who have received IVF treatment should be offered surveillance/screening and, if so, how often and by what means. I think we need to call for a policy on this.”

During IVF, an egg is removed from the woman’s ovaries and fertilised with sperm in a laboratory. The fertilised egg is then returned to the woman’s womb to grow and develop. However to harvest the eggs the woman is given medication to encourage the body to produce more eggs than usual and those are then collected by inserting a needle into the ovaries.

Women who do not ovulate never get ovarian cancer, and scientists believe that the risk increases with every egg produced. When an ovary produces an egg (ovulation), the surface layer of the ovary bursts to release the egg and must be repaired. The more eggs the ovaries produce the more cells need to divide and the higher the chance that damage will occur that could lead to cancer.

ASRM vice president Richard Paulson said: “This study confirms long thought association between infertility and ovarian cancer.

“I think it is important that people understand that infertility is not just a cosmetic disease, it is associated with other diseases including ovarian cancer.”

However charities said that women should not be overly alarmed by the findings.

Dr Julie Sharp, head of health information at Cancer Research UK, said: “This is important research, but doesn’t prove fertility treatment increases ovarian cancer risk. As the researchers point out, the risk could be linked to low fertility and related factors.

“The causes of ovarian cancer are complex and we’re funding this type of research to give us a better understanding of the most important risk factors, so that we can better advise women thinking about fertility treatment.”

The research was presented at the American Society for Reproductive Medicine annual conference in Baltimore.

Read more at http://www.telegraph.co.uk/news/health/news/11941386/IVF-women-third-more-likely-to-develop-ovarian-cancer.html

IVF linked to increased ovarian cancer risk? What are your thoughts?

Why No One Is Talking About Ovarian Cancer?

Why No One Is Talking About Ovarian Cancer?
Even during Ovarian Cancer Awareness Month in September, it felt like women were keeping quiet about the disease. Why is it so hush-hush?

Every October, we start seeing pink. Pink ribbons on t-shirts. Pink armbands on football players. Pink-themed walks, 5Ks, and marathons—all efforts aimed to support Breast Cancer Awareness Month, which was started in 1985 to encourage women to get their yearly mammograms. Since then, the month has blown up into an anticipated, annual phenomenon.

But lost in that shuffle is September’s Ovarian Cancer Awareness Month, represented by the color teal. Although the disease is rare compared to breast cancer, the statistics are far more grim. And few people are talking about them.

According to the National Cancer Institute, roughly 21,290 new cases of ovarian cancer will be diagnosed in 2015—yet 14,180 women will also die. The five-year survival rate for the disease is just 45.6 percent, compared to breast cancer’s roughly 90 percent. Often, since early-stage symptoms of the cancer are very mild, we don’t catch ovarian cancer until it’s too late. In 61 percent of cases diagnosed, the cancer has metastasized, which reduces five-year survival rates to just 27.4 percent. (Learn the facts! 4 Things You Didn’t Know About Ovarian Cancer.)

Why Ovarian Cancer Is Less Talked About
If ovarian cancer is the deadlist gynecologic cancer, why aren’t we seeing more of that blue-green spattered everywhere? There are several reasons, according to Nimesh Nagarsheth, M.D., an associate professor of Obstetrics, Gynecology, and Reproductive Science at Icahn School of Medicine at Mount Sinai, who helps raise funds and awareness for gynecologic cancers with a rock band of six gynecologic oncologists called N.E.D.

1. Ovarian cancer isn’t as prevalent as breast cancer. There hasn’t been a real high-profile public figure diagnosed with ovarian cancer in some time (not since SNL alum Gilda Radner in the 1980s), who might carry the torch for the disease. With new cases of breast cancer hitting the news all the time—from Rita Wilson to Elizabeth Edwards, Robin Roberts to Giuliana Rancic—it’s on the public’s mind more often.

2. Docs are more focused on work than awareness. While we’re all thankful to be talking openly about breast cancer, and the success of October’s pink ribbon is amazing and unparalleled, we’re still trying to hit our stride with ovarian awareness, says Nargarsheth. “In terms of gynecologic cancers, as a field, we’ve probably been a little more focused on the work as opposed to the awareness aspect.” For instance, doctors have been working on identifying the key emerging symptoms of ovarian cancer—like bloating, early satiety while eating, urinary frequency or urgency, pelvic or abdominal pain, so women can get diagnosed earlier and survive the disease. (You can lend your support to the disease by participating in these 6 Ways to Help Fight Ovarian Cancer.)

3. Some women mistakenly think they’re covered. “For breast cancer, we have the mammogram and even the self-exam,” says Lindsay Avner, the founder of Bright Pink, an organization aimed at educating women on their breast and ovarian health. “These are external organs that you can check; you can feel lumps. For cervical cancer, we have pap smears given by your ob-gyn—but these don’t screen for ovarian cancer, which many women don’t realize.” (More on what your options for an ovarian cancer screening are later.)

With annual pap smears and all the ads for Gardasil taking over the airwaves, many young women believe they’re protected for all gynecologic cancers, she adds. “The pap smear gets a lot of play, and we’ve sort of fallen prey to the marketing,” says Avner.

4. Some think ovarian cancer is an automatic death sentence (it’s not). “While breast cancer is the most common form of cancer in women, ovarian cancer is the deadliest,” says Avner. “So we do not have that army of survivors like we do with breast cancer, helping to raise awareness.” But the perception of deadliness is another reason we’re not hearing enough about ovarian cancer. The thing is, if diagnosed in the early stages, survival rates jump to more than 90 percent in stage one, and more than 70 percent for stage two. “We want to get beyond the ‘this is so deadly, this is so sad’ conversation” Avner says. “We really want women to know the symptoms and advocate for themselves.”

Here’s how to do just that:

The Symptoms
Subtle as they are, it’s important to be aware of symptoms, says Nargasheth. “Symptoms that may appear at an early stage can often seem vague and musculoskeletal,” he explains. “This might be bloating, pelvic or abdominal pain, getting full quickly while eating, appetite changes, weight loss or gain, and pressure on the bladder. A lot of women complain that they have trouble wearing pants, or that they can’t button their pants.” If you’re experiencing any of these for a week or more and they feel abnormal for your body, trust your gut and get checked. “It’s easy to pass off,” Avner says. “We all feel bloating, we eat too much Chinese food—whatever the case. But if a symptom persists, you have to see your doctor. Say what’s on your mind. Ask, ‘Could this be my ovaries?'”

Can You Protect Yourself?
Research has shown that some factors lower your risk of ovarian cancer, like taking birth control for more than two years, having children, and breastfeeding. “We’re realizing the progesterone component is probably the key to prevention,” Nargarsheth says. Progesterone—a hormone produced in the ovaries that peaks during pregnancy and while on some forms of birth control—helps maintain the health of your uterus, regulates your monthly cycle, and assists in bringing pregnancies to term. And science is starting to show that progesterone may even destroy cancer cells. In addition, reducing ovulation while taking birth control, breastfeeding, or being pregnant may help lower your risk. (And a recent study found that drinking this Tea Could Protect Against Ovarian Cancer.)

Is There Screening?
The best potential screening test available right now is the CA-125, which measures the levels of a protein that may be elevated in around 80 percent of ovarian cancer cases. If you’re high-risk (you can quickly check with Bright Pink’s Assess Your Risk tool), you can ask your doctor about getting this test; the younger you get the test, the easier it will be to figure out what your normal levels are. That said, Avner reminds that not every person with ovarian cancer will have an elevated CA-125—including her mother, whose CA-125 results were perfectly normal when she was diagnosed.

“As of now, there is no effective test that we’re advocating for everyone,” Nagarsheth explains. “Sometimes, screening tests can do more harm than good, causing a lot of anxiety over false positives, or even getting false negatives.” Talk to your doc if you have questions.

If you have a strong family history of breast or ovarian cancer, you also might want to get tested for the BRCA-1 and BRCA-2 genes. The average woman has a 1.3 percent chance of developing ovarian cancer in her lifetime—but that jumps to 39 percent and 11 to 17 percent respectively, if you carry either of the two gene mutations. If you carry these genes, preventative surgeries to remove the Fallopian tubes or ovaries—like Angelina Jolie had earlier this year—are options.

Culled- Shape

http://www.shape.com/lifestyle/mind-and-body/why-no-one-talking-about-ovarian-cancer

Why No One Is Talking About Ovarian Cancer?

Ovarian tissue transplants safe and successful, study suggests

Ten out of 32 women who wanted to become pregnant and had transplant succeeded in having a baby, and none had cancer recurrence as a result. Ovarian tissue transplants for women who want to have a baby after cancer treatment appear to be safe and are very successful, according to a team of experts in Denmark, where the procedure is routinely offered.

One in three young women who had a transplant and wanted to become pregnant succeeded in having a baby, analysis of results over the last 10 years has shown. Half of the children were conceived naturally, without the help of IVF.

The study, published in the journal Human Reproduction, is likely to be a game-changer. Many doctors have been wary of ovarian tissue transplants, worried that they might cause a return of the cancer. But among the 41 women in the study, none had a recurrence as a result.

The successes also bring closer the potential option for women to postpone having a family by having ovarian tissue frozen until they are established in a relationship or career, without having to worry about the ticking of the reproductive clock.

  • A pregnant woman
    A pregnant woman. Photograph: Katie Collins/PA

In Denmark, young women with cancer are routinely offered ovarian tissue freezing, but it is not automatic in the UK or elsewhere.

“We are saying for the first time we have a cohort of patients who definitely seem to benefit from this and none of those women have had a cancer as a result of transplanting the tissue,” said one of the study’s authors, Prof Claus Yding Andersen, of the Laboratory of Reproductive Biology in the Rigshospitalet, Copenhagen.

“Most surprising to me is that we have patients who have tissue that is active more than 10 years after the transplant.” Some of the women asked for the transplant because they hoped to start a family, but others did it to reverse the early menopause their treatment had triggered. “We have women who say ‘I don’t have a partner at the moment but I don’t want this menopause’,” said Andersen.

“Of course, if you have a cancer as a young woman, all of them say ‘I would like to survive’, but immediately after that most of them say ‘is it possible to preserve my fertility’. It is a huge issue for the patients.”

If the procedure can be shown to be safe and effective, it opens the way to young women having ovarian tissue removed and frozen so that they can postpone having children until the time seems right for them, whether because they have established themselves in a career or found the right partner.

“This is a theoretical adaptation,” said Andersen. “I think it is a bit early to take it that far but in a few years, when we know even better what we are doing, it may become an option.”

Denmark leads the world in ovarian transplantation. “I’m always asked how can it be that a small country with five million people is having the largest experience with this worldwide,” said Andersen. “Here we have a public healthcare system and women are offered the procedure for free. We take out the ovary and cryopreserve it for free and transplant it for free.

“Colleagues in the UK have been sceptical about the safety and longevity of the tissue. They were asking are you sure you are doing no harm? But there are lots of clinics in London starting to offer it now.”

At least 36 babies have been born following the procedure, mostly in Denmark. Germany, Spain, Israel and Belgium have also done significant numbers of transplants. “The results are very encouraging for a continued effort,” Andersen said.

The study is a review of the largest series of ovarian transplants performed worldwide. The experts looked at the outcomes for 41 women, who had 53 transplants of thawed ovarian tissue between them over a period of 10 years. Among the women, 32 wanted to become pregnant and 10 succeeded in having babies – a total of 14 children in all. Some others became pregnant but there was one miscarriage and two abortions, one because a relationship broke down and the other because the woman’s cancer returned, unconnected with the transplant.

The Danish procedure involves removal and cryopreservation of one ovary. During transplantation, part of that ovary is cut into 25 small pieces and inserted into the remaining ovary, which then regains its function. The hormonal cycle resumes and an egg is produced each month. Half the children born were conceived naturally. The tissue can be transplanted elsewhere in the abdominal cavity if necessary, which means IVF will be required.

Grete Brauten-Smith, clinical nurse specialist at Breast Cancer Care, said young women facing cancer treatment must be offered advice on their options from a fertility specialist.

“Chemotherapy treatment can cause infertility – a massive worry for thousands of younger women with breast cancer. So it is very encouraging to see these improving success rates for freezing ovarian tissue,” she said. “This could, in future, offer another valuable option for those who face the devastating prospect of not being able to start or add to their family.

“It is vital women are offered a referral to a fertility expert before starting treatment. Only then will they be able to make an empowered decision about their future fertility.”

Sarah Boseley, Health editor

The Guardian http://www.theguardian.com/society/2015/oct/07/ovarian-tissue-transplants-safe-successful-study

Ovarian tissue transplants safe and successful, study suggests

New study gives baby hope to women with ovarian cancer

Women who have ovarian tissue removed and then transplanted back in them at a later date have a good chance of falling pregnant, a study has found.

Those women who put their fertility “on ice” because of cancer also have little risk of the disease coming back as a result of the transplanted tissue.

The research, published in the journal Human Reproduction, found that transplanted ovarian tissue can last at least 10 years in some cases, giving women several chances to bear children.

The successful treatment could pave the way for fertility to be restored in many more women who, until now, have been unable to have babies due to the harsh effects of some medical treatments.

In the latest analysis, experts reviewed 41 Danish women who had a total of 53 transplants of thawed ovarian tissue, and who were followed for a decade.

The average age when tissue was frozen was 29.8 years. Out of the 41 women, 32 wished to become pregnant. Ten (31 per cent) were successful and had at least one child.

Overall, 14 children were born to the 41 women – eight naturally and six through IVF.

There were also two abortions during the study – one because the woman was separating from her partner and the other because of recurrent breast cancer.

A third woman experienced a miscarriage at 19 weeks.

Dr Annette Jensen, from the Rigshospitalet, Copenhagen, Denmark, who worked on the study, said preserving fertility has increasingly become part of the treatment plan for young cancer patients.

Overall, almost 800 women have had ovarian tissue frozen as part of a programme started in Denmark in 2000.

Dr Jensen said: “As far as we know, this is the largest series of ovarian tissue transplantation performed worldwide, and these findings show that grafted ovarian tissue is effective in restoring ovarian function in a safe manner.

The study found that transplanted ovarian tissue can last at least 10 years in some cases, giving women several chances to bear children.

“The fact that cancer survivors are now able to have a child of their own is an immense quality-of-life boost tor them.”

Three of the 41 women in the study had their cancer return. Two of them had breast cancer at the site of their original tumours, while a Ewing’s sarcoma patient suffered a relapse.

The researchers said none of the recurrences appeared to be related to the transplants.

Dr Jensen said: “It’s important that women who have received transplanted ovarian tissue continue to be followed up.

“In particular, we have not performed transplants in patients who have suffered from leukaemia, since the ovarian tissue may harbour malignant cells in this group of patients.”

Dr Jensen said she hoped the study would “enable this procedure to be regarded as an established method in other parts of the world”.

http://www.stuff.co.nz/life-style/parenting/pregnancy/conception/72836237/New-study-gives-baby-hope-to-women-with-ovarian-cancer

New study gives baby hope to women with ovarian cancer